Thursday, 29 October 2009

Sensible






I love shoes. Adore them really. In my book there has never been such thing as too many shoes. At one point I think I may have had more than 30 pair. (Not including another 10-12 pair of flip flops.) Because I love shoes so very much, I have always gone for quantity over quality because lets face it, Manolo's are hot but so NOT in my budget! Payless Shoe Source and Target were two of my favorite destinations for cheap yet chic shoes and I had many of them. Comfort was never my concern, as long as I didn’t have blisters after the third or fourth wearing.

Arch support-who needs it?
Quality construction-does it really matter?
Super high heels-why not?
Cramped toe box-if it’s cute, who cares?

And of course, my favorite shoe was the flip flop. *sigh*

The flip flop. No socks required. Toes sporting fresh pedicures. Sparkly straps and bamboo soles. HEAVEN!

And then my neurologist took a look at my perfectly pedicured feet, shod in the flip flop sandal de jour and said, “Those shoes are not going to work.”

*blink, blink, blink*

“Why?” I asked in a bit of terror and indignation.

She went on to explain that because of my current balance issues it was not only a safety concern to be walking around in “unstable” shoes; it was doing me no favors in the long run. I was an accident looking for a place to happen. Additionally, because my gait was already compromised, wearing flip flops, unstable heels and shoes without support were a danger to my continued health and well being. Finally, wearing sandals and other shoes that did not provide coverage over the top and sides of the foot, promoted my toes and arches working really hard to keep the shoe on; therefore compromising my gait further.

She then suggested that I start wearing “sensible shoes”

*cue the crickets*

My grandmother wears “sensible shoes”. Really old ladies wear “sensible shoes”. People in nursing homes wear "sensible shoes".

This is my idea of a “sensible shoe”.

















See. Not cute.

I spent a few weeks resisting. I would just prove her wrong. I could still wear cute shoes. And flip flops. I was NOT giving up the flip flops!

And then I twisted my ankles. Both of them. In the same week. Not bad enough to sprain them. Just make them sore. Then I tripped a few times. I almost fell a few times. I noticed that I was working really hard to keep those darn flip flops on my feet.

So on the VERY off chance that the neurologist might be on to something, I wore tennis shoes for a week.

My balance improved. Significantly. I didn’t have to concentrate so hard on walking from point A to point B. I stopped rolling my ankles. I didn’t trip as much.

*sigh*

I hated to admit it, but she was right. The cheap shoes were causing me grief.

So with much reluctance and bemoaning, I cleaned out the closet. All the cheap yet chic shoes came out. Anything with a stiletto heel? Gone. No arch support? Out. Cramped toe box? See ya.

And the flip flops? Okay, so I haven’t removed them from my closet yet. I love them! But I did stop wearing them. By next spring, I will pitch the worn out ones and give the rest to one of my girlfriends that has feet my size. I already sent the rest of the cuties home with her. (Kelly, I knew if anyone would give them a good home, it would be you!)

So here I am walking around in “sensible shoes”. No, I do not find most of them as cute as some of the unsensible shoes that I wish I could wear still. But, there are some REALLY cute “sensible shoes” out there that even I would be caught wearing. And the added bonus? I don’t have to work as hard to keep from tripping over my own two feet. That is far cuter than falling flat on my face!












*And for those of you who know of my shoe love, no; I did not have to give up ALL of my cuties. I still have my black boots (Aerosole, quality construction, chunky heel, not too high, room in the toe box) and my Pink Pointy Toe Princess Shoes (NYLA, 1/4 " heel, room in the toe box, VERY broken in. Also, you would have to pry them out of my cold dead fingers! I have an unhealthy attachment to that particular pair of shoes!)*

Saturday, 24 October 2009

Pretty Good

So how are you doing? No, REALLY.

I get that question a lot. My answer is most likely to be "Pretty good", which is followed by the phrase, "No, REALLY".

Really? I am doing pretty good. Most days. Every now and then I have a day that stinks in relation to the MS. Other times I have days that stink in relation to my job, or my tenants, or my co-workers, or my spouse. What's that? You have those days too? Wow!

Everybody has days that don't qualify as even 'pretty good'. Funny thing, I have gotten 'pretty good' at reading if the question "How are you doing?" is in relation to life in general, the MS or just polite conversation.

As for the MS, most days it doesn't impact my life so much that I can't do what I need to do. I have learned what things are difficult for me and have adapted. For example, I know that my balance is usually questionable to some degree. This means that I hold the railing on stairs. I watch where I am going on uneven ground. I wear sturdy shoes.*

My balance is significantly worse if I am tired. My adaptation to this has involved not doing laundry when I am tired because I have to carry stuff down to the basement and don't have a free hand to hold the railing. Also, if I am really tired and feeling balance challenged, I am not going to climb a ladder. Or Mt. Everest. (Not that Everest was on my list of things to do!)

When the MS symptoms flair up, I probably won't say that I am doing 'pretty good'. I might tell you that things are going well, but I am having a rough MS day. That might mean that I am having vertigo or maybe my feet have been numb all day, making it hard to walk. Does that mean I can't get on with my day? Does it mean that I have to stay home and do nothing? No. Not at this point anyway. And I hope it never does. It just means that I have to work around it.

When I have vertigo, I don't drive unless I have to and then only on known routes and not at night. When my feet go numb, I might walk with a bit of a limp (the right is worse than the left) and if it is really bad I will use one half of an old pair of crutches to get around the house. Adaptation.

So really, I AM doing pretty good. No, life isn't perfect. It wasn't before my diagnosis either. And I don't expect it to be perfect any time soon. But I am pretty good and that is good enough for me!

*If you know me well, you know that I have a thing for shoes. Tomorrow I will tell you about one of the saddest things that has happened thus far in my MS journey. It involves my shoes. It was and is a little tragic. And I was and am a little melodramatic. Especially about my shoes!*

Friday, 23 October 2009

Stay tuned for more on "What's Eating Her Brain?"

Hello there!

As I am sure you have figured out by now, I got a little sidetracked in blog posting land. Things have been busy and ever changing in my world. But, who doesn't feel that way?

I wanted to get started blogging regularly again, and thought I would highlight some of the things I plan to talk about in the next few days and weeks.

  • Drugs and how they are (or aren't) working
  • New and bizarre symptoms plus the disappearance of some of the original ones
  • Job changes, additions and subtractions
  • Trying out assistive devices
  • The Clinical Trial
  • Doctors, Nurses and Assistants. Oh My!
  • Insurance Companies & Health Care Reform
  • Shoes. A fond farewell to the flip-flop and sexy heels. *sigh*
  • Avonex Injections
  • Fear
  • Hope
  • Trust

And anything else that may come up from your questions or from my daily life.

Hope you are all doing well and that this post is the begining of more regular updates!