I did not spend yesterday upstairs with the adults for Easter service. I was downstairs in our newly painted and cleaned space (Can I just say THANK YOU again to all the hands that made that happen in time for Easter Services!!!!) with the kiddos.
We had three babies and 4 preschoolers with us yesterday. The babies did a great job being cute. I wish I would have brought my camera with me. Our church is pretty casual and jeans & tees are the normal attire. Easter Sunday seems to compel everyone to dress up though, and the kids were no exception. All of them were too stinkin CUTE! And how do you not just love a baby in a tie and a HAT! (Amos, you and your brothers were to die for!)
The preschoolers were wearing their Easter best as well, but the comments that came out of their mouths yesterday had me rolling on the floor.
For example-
Emily B.: Come'er please!
Me: Okay. What's up, buttercup?
Emily B.: (In all seriousness and hands on hips) Buttercup is not my name. I am Emily. I am 3. You are not 3. You are........ (cocking her head to the side) A LOT more than 3!
(True that, girlfriend!)
Luke E.- (And really, with the tie AND a suit vest!!! Could you be ANY cuter?) who insisted on singing Jingle Bells regardless of what song we were singing. Even when I asked you what song you wanted to sing and you suggested Jesus Loves Me, Jingle Bells was all that would come out of your mouth when we started singing. And it cracked you up! That was the even funnier part. You would launch into Jingle Bells and then double over laughing at the hilarity. Added bonus: You "playing" air guitar using a toy boat while singing Jingle Bells.
Mateo Z. - Your love of Cars the movie and cars in general never ceases to amaze me. I loved your retelling of the the Easter story with cars. And of course, Lightning McQueen played Jesus. "Lightning is Jesus cuz he is the bestest one. Like Jesus!"
Chaim P.- Buddy, your fear of the unknown is so sweet it sometimes breaks my heart a little. I can't wait for you to come down and stay a whole service with us again. I am so glad you came down and tried it out for a few minutes. And you made me laugh when I asked if you were scared because you were crying when mom left for a minute and your response was: "I not scare a you. I scare a duh room." At least you aren't scared of me anymore. That only took about 9 months!
Sweet, sweet kids. You guys made my Easter Sunday so very special.
Adventures in being diagnosed with Multiple Sclerosis and learning to live beyond it. I am not my diagnosis, my diagnosis is just a part of my life.
Monday, 5 April 2010
It's best to only light one end of the candle at a time
It has been a wild couple of weeks around here.
I have been feeling really good lately. About the best I have felt in 2-3 years. Very little neuro pain, no balance issues, no headaches, no fine motor skills issues. I still have the never ending fatigue, but the drugs seem to keep me functioning at a tolerable level.
Apparently when I work like a crazy person and burn the candle at both ends, I can get the symptoms to come back.
I have been working at one of our properties in Woodburn for the past 3 weeks. I have picked up an additional 10 hours a week down there + drive time and am working 6 days a week between my place in Portland and the extra hours in Woodburn.
In addition, this last week our church moved into our 4th (maybe 5th?) location in the last 2 years. This new spot required A LOT of clean up and preparation before the space was usable for Easter Sunday. Mostly clean up in the kids area. Guess who is in charge of the kids program? Yeah. That would be me. During the last week I made 1 trip to IKEA, 3 trips to Ross/Marshalls/HomeGoods & 2 trips to Goodwill to pick up needed supplies. Plus on Saturday I spent 8+ hours painting, cleaning, & prepping the childrens area. (And to all of you who helped with that major project THANK YOU SO VERY MUCH!!!! We couldn't have done it without you!)
Needless to say, I am EXHAUSTED! I really thought I could keep up with all of the running, but I am finding this morning that I am in a sorry state of preparation for the week. I can't find stuff that I need for work (paperwork & my flash drive); my entire body aches and a lot of the old neuro pain is flaring up, and I am SO TIRED I could cry. So far the drugs aren't helping one bit.
I am disappointed that I can't keep up like I used to. In the past I would have been able to knock out a week like that and added one more right behind it. It is frustrating to know that my limitations are, well, limiting! But at the same time, it is good to know that I have (up until now) found a good balance where I was still able to do a lot of things that are important to me, help out at church, hold down a job and still enjoy my life. I just need to be better about setting limits and not trying to do everything.
Hopefully with a few days of "normal" activity, I will be feeling more like I have the past few months and not like I am getting run over by a train!
I have been feeling really good lately. About the best I have felt in 2-3 years. Very little neuro pain, no balance issues, no headaches, no fine motor skills issues. I still have the never ending fatigue, but the drugs seem to keep me functioning at a tolerable level.
Apparently when I work like a crazy person and burn the candle at both ends, I can get the symptoms to come back.
I have been working at one of our properties in Woodburn for the past 3 weeks. I have picked up an additional 10 hours a week down there + drive time and am working 6 days a week between my place in Portland and the extra hours in Woodburn.
In addition, this last week our church moved into our 4th (maybe 5th?) location in the last 2 years. This new spot required A LOT of clean up and preparation before the space was usable for Easter Sunday. Mostly clean up in the kids area. Guess who is in charge of the kids program? Yeah. That would be me. During the last week I made 1 trip to IKEA, 3 trips to Ross/Marshalls/HomeGoods & 2 trips to Goodwill to pick up needed supplies. Plus on Saturday I spent 8+ hours painting, cleaning, & prepping the childrens area. (And to all of you who helped with that major project THANK YOU SO VERY MUCH!!!! We couldn't have done it without you!)
Needless to say, I am EXHAUSTED! I really thought I could keep up with all of the running, but I am finding this morning that I am in a sorry state of preparation for the week. I can't find stuff that I need for work (paperwork & my flash drive); my entire body aches and a lot of the old neuro pain is flaring up, and I am SO TIRED I could cry. So far the drugs aren't helping one bit.
I am disappointed that I can't keep up like I used to. In the past I would have been able to knock out a week like that and added one more right behind it. It is frustrating to know that my limitations are, well, limiting! But at the same time, it is good to know that I have (up until now) found a good balance where I was still able to do a lot of things that are important to me, help out at church, hold down a job and still enjoy my life. I just need to be better about setting limits and not trying to do everything.
Hopefully with a few days of "normal" activity, I will be feeling more like I have the past few months and not like I am getting run over by a train!
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