Hey there.
So I have continued to be lousy at keeping the blog up to date. I guess that means there have been no new developments to report. And that I have been busy.
I am still working as an apartment manager. I FINALLY got all of the units full and don't have anyone on notice to move out. Lets hope that it stays that way for a few months. This job is not my dream job by any means, but it has been a blessing as far as providing a flexible schedule, an interesting opportunity to meet lots of interesting people and lets not forget a roof over my head!
I completed my 6 month bench mark with the clinical trial. I had an MRI last Wednesday and did the entire battery of nueropsych testing again. Apparently my brain is still functioning and located where we last left it. Always good to leave your brain where it belongs! I am still tolerating the medication well and have gotten used to the injections. I don't have much pain the day after injection, just SUPER tired.
Many of my symptoms from this summer have lessened or resolved at this point. Woohoo! I would guess it is fair to say that I am in remission at this point. So now we watch and wait to see if/when I have another flare. Hopefully, it will be a VERY long time out and the symptoms minor. My worst symptoms at this point are the chronic fatigue and the MS banding. The banding seems to come and go. Its worse when I am extra tired or under more stress than usual. The fatigue....well, it just does what it wants. No amount of sleep seems to make it go away. The ADD drugs seem to keep it to a dull roar, rather than an overwhelming need to nap at all times. And I have decided that maybe I am just part shark. Sharks swim in their sleep so they don't drown. I have to keep moving so I don't fall asleep. As long as I don't sit down for too long, I can usually push through with only one nap a day.
I only have 3 more monthly study appointments and then I go to once every 3 months for the duration of the study. Which would be great to have fewer doctors appointments. Apparently my body LIKES seeing the doctors because now I am having weirdness with my kidneys.
At my monthly clinical trial appointments they always do a urinalysis and apparently I have had microscopic blood in my urine for the past few months. Since it isn't going away, I was referred to a urologist who preformed a cystoscopy last week and declared my bladder "pink & healthy". Then she ordered an ultrasound of my kidneys. My kidneys which decided that a mere ultrasound was not enough, they really wanted a full imaging scan. The left one appears to have a "malformation" and I get to have an MRI of it next Wednesday.
My PCP is not terribly alarmed at this point (she got to deliver the news about MRI #4) and says we should just rule anything out, that ultrasounds are sometimes inconclusive, and that sometimes body parts don't look the same from person to person. In other words, I may just have a wonky shaped kidney! I always knew I was unique. I just wish being unique didn't cost so stinkin much.
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